When your LOWD first received their diagnosis, you were probably given some information or at least a brief description as to how the doctor believes they developed dementia. Often the doctor will talk about various parts of the brain BUT if you are like most Careblazers I have spoken to, you likely remember very little of this conversation. That is NORMAL. When you receive the diagnosis it is hard to take in much else. For this reason, I want to spend some time reviewing some basics about the brain and the impact of dementia on it.
If you would rather watch a video on this topic, click here.
If you remember, dementia is NOT a specific disease but rather a group of symptoms that impacts thinking in at least two areas such as attention, memory, language, or executive functioning to the point that it impacts someone’s daily functioning. Because dementia is not a specific disease, there are a lot of reasons someone may end up with these symptoms;...
In this week's video, I chat with dementia expert Teepa Snow as she demonstrates exactly how to respond to someone with dementia who is upset. She specifically goes over examples of how to get someone with dementia to change their clothes when dirty and how to respond when someone with dementia wants to go home.
To watch this interview over on my YouTube channel, click here.
CONNECT WITH TEEPA:
In today’s post I’m going to talk about the differences between two potential ways of approaching care for your loved one with dementia (LOWD): palliative care and hospice. Caregivers and family members often find these topics difficult to talk about so having these conversations early and, if possible, with your LOWD, can be helpful.
If you would like to watch a video on this topic, click here.
So what is palliative care?
Let’s start with the word palliative. It is a fancy way of saying relieving pain or symptoms without addressing the underlying cause. So palliative CARE is where a set of providers address your LOs symptoms regardless of why the symptoms are there. They work alongside your LOs medical provider, who continues to treat any medical conditions your LO has. For example, if your LO has heart disease, their medical provider will continue to try to manage the heart disease through surgeries or medications, the palliative...
Today I want to talk about a topic that can be sensitive for some Careblazers: Hospice.
There are many myths surrounding hospice care and these myths and stereotypes often prevent people from seeking care that could provide them with wonderful additional resources for both their loved one and themselves.
If you would rather watch a video on this topic, click here.
First, as a quick reminder, hospice is medical care that is focused on keeping or improving quality of life for people who have a condition that is getting worse and that is not likely to be cured.
When people hear the word hospice, they often jump to thinking about a patient who is bed bound and hours away from passing. While this is a situation that hospice can provide service in, it is not the only situation in which hospice is appropriate. Furthermore, this image often drives people away from seeking this service that can be invaluable in a situation like caring for someone with...
This past week I posted a video over on my YouTube channel, sharing with you my biggest piece of dementia caregiving advice for any caregiver. Go check it out at this link here!
I'm coming out with a new series on hospice and palliative care soon so stay tuned for those topics!
Keep up the good work Careblazers!
This week over on my YouTube channel, I chat with Courtney Heiden. She is a licensed financial advisor and expert in long-term care pre-planning and asset protection. Her family’s story sparked her desire to launch a financial planning practice, specializing in helping families find quality care for their loved ones without losing everything in the process. Family means everything to Courtney. Her passion is to offer hope to her clients in a career that is close to herb heart.
In this video she shares some steps you can take to help protect your hard earned assets from the financial toll that dementia can have on families.
To head over to my YouTube channel to watch my interview with Courtney, click here!
You can learn more about Courtney at: www.financiallybright.com
Follow her on Instagram at @financially.bright
You can also download a free copy of her book:Shining Light on the Truth: Dementia and Your Money at ...
Hey there Careblazer! Have you ever gone to a doctor's appointment for your loved one, or even for yourself, and left feeling like you had forgotten to ask something? Or been on the ride home and realized that you never asked about the most important thing you had to discuss with them? If this sounds like you, you are not alone!
Under regular circumstances, doctors appointments often happen quickly, can feel stressful, and follow the agenda of items the doctor needs to get through, leaving you a short period of time to ask questions at the end. The way this is set up means that it is really easy to forget things! Now let’s add the fact that you are bringing your loved one with dementia (LOWD) to the appointment. What additional distractions does this bring? Does this add extra stress, extra steps?
For these reasons, having a plan of how to speak with your LOWD's provider can be incredibly helpful. For the purposes of demonstrating how to prepare, I am going...
Today I want to talk to you about something very practical to help you track all of the information that comes your way as a caregiver: creating a healthcare binder.
I KNOW this sounds simple and many of you are probably wondering why we would take the time to talk about it today. As a caregiver you receive A LOT of information, often from A LOT of different providers. As the Caregiver for your LOWD, it often falls to you to act as your LO's case manager and this can add A LOT of stress! One thing that I have seen work time and time again for caregivers is creating a system to organize all of this information and I would like to share one version of this that other caregivers have found helpful.
Before we start digging in, please know that you can customize this in whatever way you think would work best for you! Leave some items out, add some items. Get creative for what works best for you and your LO. Once created, this is something that you can easily...
Welcome to the Careblazer blog, the place where I share dementia tips, strategies, and information for family members caring for a loved one with any type of dementia (such as Alzheimer's disease, Lewy Body dementia, vascular dementia, frontotemporal dementia, etc.) Every week, I share tips and tricks to help you in your dementia caregiving journey.
Last week on my YouTube channel, I chatted with Adria Thompson. She's a speech therapist who spends much of her days solving difficult dementia behaviors. In this interview, she shares how to approach those challenging behaviors in a way that will increase the changes you'll actually understand what drives the behavior.
If you would like to check out this interview and learn all about the ways a speech and language pathologist can improve communication for you and your loved one with dementia, click here.
You can learn more about Adria at: https://www.belightcare.com